365 days past and leaping into the next 366

(I haven’t been blogging much lately for two reasons. One, there isn’t much to say; that is there isn’t much going on in my multiple myeloma world. Two, I’ve been very busy with everything else – a hectic fall photography season and the holidays. So two “good” reasons.)

So this past year has been, well, huge. Just a few days over a year ago I told my kids and my family and friends that I have multiple myeloma. A year ago on  January 5th I started treatment. I got the flu. I had a weekend hospitalization with a neutropenic fever. My daughter got married. I was hospitalized for 5 days for DCEP treatment. I bought a wig. I lost my hair. I had a stem cell transplant. My daughter got pregnant. I went back to work. My son got a dog. I had a busy fall season of photography shoots and editing. My hair started to grow back. I started maintenance therapy. And then the holidays.

The coming year is already chock full of things to look forward to:

  • Sarah’s baby shower
  • A trip to Naples, FL, staying with Dennis and Ruth Ellen and vising many others
  • The birth of my grandchild (sex currently unknown)
  • Graduation of two of Scot’s daughter’s (Maia (college) and Tess (high school)
  • A cousin’s daughter’s wedding in GA
  • Another week in the Hamptons
  • Our wedding (Scot and I)

And the ongoing maintenance therapy. And hopefully that is all on the myeloma front.

And of course the ongoing hair saga. More on that later.

As I wrap up this past year I want to thank everyone again for their love and support. You are my strength.

So much to celebrate

My daughter is getting married this week. My daughter, my baby, my firstborn. And yes, there is so much to be thankful for, to celebrate.

She is marrying a wonderful, fun man, who seems to be a very good match for her. The wedding also makes them officially a family, as he has two young daughters from his first marriage, who adore my daughter and she them.

loveI had hoped to get through the wedding without starting treatment and without revealing that I had multiple myeloma, but that was not to be, But, I am grateful that it has not interfered with any of the activities or the joy of planning such an event. We hosted an engagement party, bought dresses, tasted food, had a fabulous “Showerpalooza”, shopped for accessories, worked on centerpieces, and scanned a zillion photos. I even made my daughter try on my wedding dress, as I always said I would, she has always hated it, and indeed it was not at all appropriate – but it was fun doing it. She made hEr wedding ring from her father’s wedding ring. We’ve had so much fun, reminisced and made new memories – and we haven’t even had the wedding yet!

We will all miss my husband, her father, but she is determined that this be a happy day and I could not agree more.  He will be with us, as he always is, and we have already talked about setting aside a moment, which we will do. But, if there is anything that losing a spouse and having cancer has taught me, it is to enjoy all the good things, the happy moments and the joyous events, fully and with all I’ve got.

We will be surrounded by friends and loved ones, not only from our backyard and all over the country, but all over the world – Massachusetts, New Jersey, Pennsylvania, DC, Virginia, Michigan, Florida, Georgia, California,  London and Argentina.  we are so fortunate to have so many people with which to share our love and this special day.

And as someone asked me recently, yes, I have comfortable dancing shoes, if you’re looking for me I’ll be on the dance floor!