I Can’t Stop Touching Myself

My head, that is – and my new baby hair to be precise!

About 3 days ago my head started growing hair, real hair. I’ve had this weird stubble for weeks that has just been static, no growth, no change and only in a few spots on my head. Now I have this soft, baby hair all over my head! Progress! Real honest to goodness progress – most excellent. And I do find myself rubbing my own head all the time!

My red and white blood cell counts and platelets are all still trending in the right direction. I don’t have to have them checked again until August 17th. I am not sure when they will actually look at my “cancer numbers”. I am thinking maybe when I go back to Dana Farber on September 3rd.

I’d have to say I have reached a plateau in terms of how I am feeling. I am still easily fatigued and remain queasy most of the day. I did just read that the fatigue often lifts 3-4 months after the treatment, so I may have a ways to go. I continue to try and improve my fitness, but with baby steps. The queasiness seems to be something I just need to get used to for a while.

I have started to have an occasional quarter glass of wine with company (just don’t want more than a taste) and I had my first cup of coffee this morning, which feels more normal.

This Saturday is a big milestone for me as nearly all of my food restrictions (save raw meat and fish, salad bars and soft serve ice cream) will be lifted and I will be allowed to eat restaurant food – just in time for my annual Hampton Bays vacation. I can’t wait. I have been tempted to cheat as the date gets closer, but I am holding strong. After all, I have waited this long, what’s a few more days.

I have to admit to some anxiety about the long walk off the beach, up the dunes in the broiling sun, because of my fatigue, but I’ll just take it slowly, nothing is going to keep me off that beach, which is truly my “happy place”.

Thanks to everyone who sent books, cards, visited, walked with me, called, texted, etc. It has meant a lot to stay connected to the outside world during my “confinement”.