Sitting in the inpatient waiting area for my room to be cleaned. So close…
The FDA approved the expanded access request for me for the CAR-T cell therapy. The request still has to be approved by Dana Fatber’s IRB (Institutional Review Board) but that is being expedited. All of my orders need to rewritten and they are changing the dose of my chemotherapy because of the low platelets.
They anticipate starting the chemo tomorrow afternoon.
It’s been an interesting day because Alison and I had to check out of the hotel at 11 am. And COVID.
First we headed to the Blue Hills Trailside Museum (which is mostly like a small zoo), but it was closed.
From there we headed up the North Shore where we found delicious fish and chips and the Gloucester Fisherman’s Memorial.
Our last stop was Rockport, MA which is just lovely, hope to go back non-COVID (and feeling better).
All the while checking for email messages and finally calling the hospital and was told it would be ready around 5:00. Got up to the room around 6:30.
It was good to tool around in a car and see some sights (without exerting myself too much). This stay in the hospital could be anywhere from 10-14 days. No visitors allowed.