I had three photo shoots this past weekend and I started working from home on Monday. It feels good. I feel good. I can’t return to the office until September 16th, wish it were sooner.
In other non-cancer news. Two weeks ago I had my MRI of my olfactory cortex meningioma (see my post Incidental Findings) done and last week Sarah and I went to see Dr. Sisti at Columbia-Presbyterian, CD in hand. It had been a year since my last MRI. There had been no growth the 6 months prior to that so he said we could go a year. Much to my surprise and my chagrin he told me it had grown, not a lot, but it had definitely grown and will need to come out. When he heard I had just had a stem cell transplant he said we would not do it this year. But still, it will need to come out at some point.
“Coming out” involves a craniotomy, it is not actually brain surgery, as they do not go into the brain, but it is skull surgery. There is a risk of damaging the olfactory nerves, in which case I would lose my sense of smell/taste. It is a 3-4 day hospital stay and a 30-day recovery. They make the same cut in your hairline as they do for a face lift, except you don’t get the face lift!
Oh, and I almost forgot, my first day working from home, I lost power. I ended up working in my local Starbucks for three hours.
I kid you not, it is truly always something 🙂
Upon returning home from our week long vacation in the Hamptons I started to toy with the idea of starting to work from home earlier than I had originally anticipated. I am feeling better and better. The lingering symptoms are dry mouth, thirst and the biggest one, fatigue. The fatigue is somewhat difficult to track. I felt good on vacation, the trips down and back to the beach were completely manageable. Dining out every night was easy (ha!) as was strolling around town. I felt so good when I came home that on Monday I did what was close to my old full work out, the next day however, I was wiped out. So I am working on finding a balance. And although I am back to my regular 40 squats a day and take long walks without a problem, I wake up every morning with my legs feeling exhausted even though I have had a good night’s sleep.
We even went to a great wedding in NYC this past weekend. To prepare for it, I really took it easy the day before and the day of and I did fine. I danced and even stayed up until 11:00!
So. although I am heading up to bed these days at 8:00 p.m. I do feel ready to start back to work. At this point, I am only going to get fat and poor being home with no purpose. I have my first photography shoot this Friday (followed by one on Saturday and one on Sunday) and I will start working from home on Monday the 24th. In getting the doctor’s note required to start back to work I found out that I can return to working in the office on September 16th, which is earlier than I had thought (confusion on my part over which date we were counting from, transplant or discharge dates) and very good news. I miss my work peeps!
And of course, there is the hair update: it is growing. I’d have to say I am at the Sinead O’Connor stage. Here is a photo from the wedding prior to donning my wig.
As I have felt better I started to wear the wig more (for the longest time I was just wearing buffs or nothing) and I did go and have it trimmed (only I could spend money at a salon when I have no hair!) and it is much more manageable now. But I am also going out now with “no hair”, meaning no artificial hair (I also have a baseball hat with hair that Scot calls my Sandra Bullock). I am now trying to figure out when I have enough hair to dye it to hide the greys.
So, I am moving along now at a fairly quick pace. I have an appointment on September 3rd at Dana Farber where I hope to learn what sort of consolidation therapy and maintenance therapy they are planning for me.
Shortly I’ll be walking over this ridge! Scot will be carrying a ridiculous amount of gear as he has purchased his and hers boogie boards for us and we have a bag full of toys like I used to bring when my kids were young – we’re all about the fun! And the “west and wewaxation” as Scot says.
My first meal as a free woman was a Starucks latte and a pastry from G Bakery.
I see lots of raw fruits and vegetables and dining out in my future.