If you know me, if you know me at all, you likely are aware that patience is not a strong suit of mine. I’d like to think that I have become more patient as I get older, but suffice it to say I had a long way to go!
My recovery is moving at what times feels like a snail’s pace. My first week home I was very fatigued, laying around a lot since even sitting up made me tired. Sarah reminded me that anything I was doing, above and beyond going to the bathroom, was more than I was doing in the hospital. Last week I did walk every day, but was stuck at a 15 minute stroll. And the nausea, pretty persistent.
But this week, I am finally seeing some progress. I added 5 minutes to my walk and yesterday felt pretty good doing it which means I might be up to 25 minutes soon. I am spending more time sitting up than laying down as the week moves on. And speaking of the week moving on, I was pleasantly surprised that it was already Thursday, time is moving a bit faster as well.
I am still napping, but not every day. I am cooking on average one meal, maybe one and a half meals per day. I am starting to get back to doing my daily squats, formerly 40/day, today I did 15.
I went to Smilow for my third check up today and saw the APRN. She said I “looked great” (surprise) and that I am “ahead of the game”, so that’s good. My WBC and neutrophils have dropped a bit (to be expected) and I may need a neupogen shot next week (“to remind the bone marrow what we want it to be doing”). But platelets and hematocrit both look good.The nausea is lingering, she said that the weird feeling I have on my tongue is what is likely happening all along my GI tract, so that makes sense. I’ve gone a whole day and sometimes a half a day with no nausea meds but it’s pretty inconsistent. I head to Dana Farber with my sister on Monday. We’ll see what they say there.
Scot has been a trooper doing the daily bathroom/kitchen cleaning. Sarah did a bang up job doing the dusting and floor cleaning this week – who knew she could clean so well – a lot has happened since she left home! And I want to thank everyone for the cards, texts, messages and emails – and Carol for the Life is Good shirt!
I have started to have some visitors which is nice, it breaks up the day. And folks have been giving Sarah and Scot the occasional reprieve from “walking me”.
And then there’s my hair. I have some stubble/fuzz. I am very curious (read: impatient) about what it is going to look like a week from now, two weeks from now, etc. Only time will tell…