The big news of the day – I am #1 on the list for a room with shower!
The more time I spend here the more conversations with staff become personal. The day nurse I have had for a few days is a widow with a 28 yo living at home and a terrier/pug mix dog. The PCA (personal care assistant), the one who got me the reiki session, wears wigs, has no hair and loves my buffs so I’ve pointed her in the right direction for purchasing some. Another nurse has an 8 month old bulldog. Another one has a sister who recently came out to her family as a lesbian. And yet another is at wedding in South Carolina this weekend. They are old, young, born and raised anywhere from Boise, ID to CT to right around the corner. We’re one big healing family 🙂
I’ve come up with a new side effect just now as I try and get this blog out – mucositis. For me it fells like a little bit of an air bubble about midway down my esophagus and then a stabbing pain right underneath my ribcage on the right side. Apparently, this is treated with oxycodone. It only hurts when I drink or eat, each swallow of beverage and/or bite of food.
It is very complicated managing the side effects and treatment of same side effects. For instance, I am losing weight (although I was up 2 lbs. today) and not drinking enough. But I have to do this mouth care which includes 2 different preparations, one a rinse and spit, and the other a rinse and swallow. They are to be taken one hour apart and you cannot eat or drink anything half an hour after you take each one. And now eating and drinking is giving me a stabbing pain in my gut. Alas and alack…
But I digress, today was really a pretty good day, nausea held at bay, Scot is here, brought me up a new hoodie (the room can get cold, in between my hot flashes) and we had a good nap (the “mens” know how to sleep during visitations, the women, not so much). Kyle treks back up here tomorrow for the day, Father’s Day was a tough one to fill.
Maybe I just need a belly rub like the lion above in Zimbabwe, 2012.