This post is going to be quite the juxtaposition from the last. I am still feeling okay and getting good care here at Dana Farber. But, starting late in the day on Friday it felt like a lot was coming at me all at once.
It started with a call from the visiting nurse company assigned to deliver the supplies and give me the instruction for me to flush my PICC line myself every day at home. I really am fine doing that, I’ve seen it done again and again in the hospital. The problem was the woman on the phone. She was irritated with an end of the day on a Friday request for service on Monday. Plus I work, which is an inconvenience for them. And then she needed to know which doctor would sign the nursing plan. I gave her my list of doctors but I did not (and do not) know who will sign off on the plan. I finally got to the point where I asked her if I should not leave the hospital with the PICC line in – she was giving me no confidence that she could get everything done for me on Monday. She then backed down a little bit, but basically insisted on leaving it open and me with some doubt.
Shortly after that I checked my email and I had received the calendar and more information in preparation for the stem cell transplant. There were some surprises in there for sure. A whole packet of information regarding dental evaluation and treatment that needs to be done before the transplant. Stressful for me because a.) I am in between dentists and b.) I am trying to not miss so much work.
And then there are all the details of the SCT and how much time I will be away from home (it is looking like a little over 3 weeks, if all goes well). Never mind the side effects of the treatment and transplant itsself.
And then there are all of the restrictions after discharge once I am home. And how long they last.
And I have to get a wig.
Oy. It will be okay. As a few wise people have reminded me in the last day, one ting at a time, one day at a time, one moment at a time.
I was talking to Sarah today and I started to “be concerned” about not being able to bring my own toiletries for my stem cell admission and what would my hair look like without my bevy of hair products, and then, we remembered – I won’t have any hair!