After a glorious wedding weekend, filled with love, fun, family, friends, laughing, dancing, and wedded bliss, a dear friend’s son suddenly passed away. Just like that, elation to devastating sadness. Life us like that. And there are no words of condolence. No fixing it. And it seems so banal, but truly all we can do is relish the “good” things, the happy moments, the glorious occasions, the glowing smile of your daughter the bride, the arm of your son around your shoulder with a knowing squeeze, the silly laughs, the snuggle of your dog, or holding hands.
And then, there’s the cancer. A couple weeks before the wedding my doctor at Dana Farber decided to switchg treatment. My “numbers” had plateaued. They want to see them going down, hopefully to zero, a “complete response”.
So, after my off week the week before the wedding (which was perfect, I felt great, super great even!), my 5th cycle started last Monday. No more Revlimid. Still getting dexamethasone (steroid) and Velcade twice a week. And adding cytoxan on days one and eight of the cycle (followed by one week off). With the cytoxan I get an anti-nausea medication (Zofran) along with a prescription for it.
I have to say I don’t feel as well with this regimen as I did with the last. The nausea lasted all week, although was abated by the Zofran. I was more tired, more achy. But nothing that actually held me back (save the one day that I went straight to bed when I got home from work).
This morning my blood work showed that I am neutropenic (low white blood count), a side effect of the treatment. But going ahead with treatment anyway with the addition of Neulasta (a drug that promotes white blood cells) which I will come back in for tomorrow.
So, onward we go!
Because that’s life.