I started my 4th cycle of revimid/velcae/dexamethasone this morning. My doctor at Smilow would like to see me making quicker progress and would like to add a 4th drug. My doctor at Dana Farber is pleased with my progress and does not want to make any changes at this point. When I spoke to the APRN at Dana Farber late last week she actually said that sometimes with a very quick response there is also a faster relapse, that sometimes a slower, steady response is better. “Sort of like when you lose weight too fast and then gain it all back”, she said. I am happy with Dana Farber’s plan. I have virtually complete trust in them, they are the experts, this is all that they do.
My mom accompanied me to my appointment this morning (for the first time). We had a very long wait in the exam room after seeing the fellow, waiting for the doctor. I finally said to her “You know Mom, if you want to have cancer you need to be more patient than this!”
I did have the flu (influenza A) for about two weeks. So there’s another good thing about cancer, if I had the flu and did not have cancer, I probably would have never known I had the flu, I would have not gotten the rest I needed and I would have just kept pushing myself and wondering why the heck I couldn’t get over this terrible cold – so there’s that.
Now I have two weeks of treatment and then the off week leading up to my daughter’s wedding, which is perfect. Lots to do, exciting stuff, can’t wait to see my baby girl get married and visit with family and friends from near and far.